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The Y O Y Adenomyosis Study

The Year On Year Adenomyosis Study



The Adenomyosis Advice Association regularly monitors current research and published data relating to the causes of adenomyosis.


Since so little is known about the cause of this condition, the association will be carrying out research each year and is currently seeking 1000+ participants to assist with a study into the potential causes of adenomyosis.  A short questionnaire will be sent to the participants to complete and return by email in June. 


Participants are welcome from every country.  It is anticipated that the year on year global study will take around six months to complete each year.    The questionnaire will detail aspects of daily life and the participants' general health and wellbeing.  Each form will be completed anonymously, with only the location of the participant recorded. 


Thereafter, participants will be invited to report back the following year to complete a follow-up quesionnaire.  The plan is to accumulate an ongoing year-on-year 'story' of adenomyosis, and to see whether surgery, medication and other treatments are/were indeed useful and helpful to those living with the condition.


A paper will then be published showing the findings of the study on this website for each relevant year. 


It is hoped this data will then inspire further medical research and development into the causes and treatments, and ultimately help develop a better pathway of care and a standard recognised management process for adenomyosis.


If you would like to be included in this groundbreaking research or wish to assist in any way, please email: 


Thank you.